Hi -I'm scared stiff

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I've actually had diabetes since i was nine, and now i'm 22. it has never been a major issue, except for recently. I was actually for the first time pretty much under control. my a1c was 6.6! I had never gotten it this low. But recently, I had two 39's. One at work, and one at home. I completely Panicked! Ever since then, I'm completely not myself. I am anxious, and nervous, and keeping my scores much higher. Anything below a 150 is considered low to me right now. I can't help it. I'm so panicky and anxious. I'm on meds for the anxiety, but I cant get this fear to go away. I really want to, and know that a low shouldn't be devestating, and it is treatable, but i can't help it..Has anyone gone through a similar experience? Any advice?
Posted about 6 years ago
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You are NOT ALONE!! I had a seizure 3 years ago & I panicked! I was ready to use my glucagon every time I felt tired or dizzy! 
I have good news though. Recent research has shown that keeping your sugars between 140-190 is not specifically harmful. My endocrinologist has encouraged me to aim for a blood sugar of 150. This has decreased my lows dramatically!! 

Are you on a pump?
Posted about 6 years ago
Posts: 0
Hi!
Thank you so much for replying! I am on a pump, but I'm just so annoyed that I am so nervous about it. I used to be fine if I was low. I just treated it, and went on with my day. Now, I'm scared to drive, scared to walk to a friend's house, scared to date..scared to do anything! I'm wearing a sensor, which sometimes is accurate, other times not, but its not helping to alleviate my worries :(
Posted about 6 years ago
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Hi, I'm Starrlight and I feel lonely and abandoned. I have type 2 diabetes and very few people around who know anything much about it or follow a healthy treatment plan. My health has been bad for a while and I don't know how much is related to diabetes. I have a Membership at Curves to work out and get dietary help, but I don't go. I feel very alone. 
Posted about 6 years ago
ari
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Starrlight wrote: Hi, I'm Starrlight and I feel lonely and abandoned. I have type 2 diabetes and very few people around who know anything much about it or follow a healthy treatment plan. My health has been bad for a while and I don't know how much is related to diabetes. I have a Membership at Curves to work out and get dietary help, but I don't go. I feel very alone. 


Hi Starrlight. I feel for you. This already difficult disease is much, much worse when you feel like you're the only one. It's worth the discomfort of reaching out to others in your nearby community, if you can. I don't have solutions, but I want you to know that you're not alone.
Posted about 6 years ago
Posts: 0
DiabCel wrote: I've actually had diabetes since i was nine, and now i'm 22. it has never been a major issue, except for recently. I was actually for the first time pretty much under control. my a1c was 6.6! I had never gotten it this low. But recently, I had two 39's. One at work, and one at home. I completely Panicked! Ever since then, I'm completely not myself. I am anxious, and nervous, and keeping my scores much higher. Anything below a 150 is considered low to me right now. I can't help it. I'm so panicky and anxious. I'm on meds for the anxiety, but I cant get this fear to go away. I really want to, and know that a low shouldn't be devestating, and it is treatable, but i can't help it..Has anyone gone through a similar experience? Any advice?

My Dear DiabCel,  You are not alone with the feelings of panic that extreme lows can cause.  Even the most veteran of diabetics experience these same fears after experiencing a low below 40.  I actually have had multiple lows below 20 where EMTs have not even been able to obtain a reading on their glucometer because it was so low.  Not to scare you further, but when those happened and I seized before my son was able to give me glucogan and get paramedics on the way, I came around in the ambulance absolutely terrified!!  But, I would like to reassure you that this feeling of fear and panic will pass.  Truly it does!  You just need to take that energy that is focused NOW on panic and put it into making sure you have a step-by-step plan not only in your head, but written down and with your blood sugar testing supplies.  Here is what I have in mine:

1-  When I get ready to go somewhere that requires me to drive:  I check my bgs before ever leaving the house.  If I am below 150, I take a couple glucose tablets and wait 15 min before checking it again.  Generally I am at or just slightly above 150 at that point and can leave.  I NEVER (with the approval of my endocrinologist) even put the keys in the ignition if my bgs are not at or above 150.  If I find while I am driving that I feel ANYTHING out of the ordinary (a bit confused, disoriented, nauseated, colder than normal, or anything at all that I was not feeling when I began driving), I pull over immediately and take my keys from the ignition, throw them on the passenger floor (so I cannot reach them easily), and check my bgs.  If I am still within the range I should be, I regain my composure through a few deep breaths and resume my trip.  The longer I have had diabetes, the more varying the symptoms of a low blood sugar are for me.

2-  When I am checking my blood sugars before bedtime:  I check back through the day and check for any lows which required treatment or highs over 200.  If I have either of these, I quickly check the 2 days prior for any patterns that may show up.  If there is a pattern, I make appropriate adjustments to my basals or meal boluses to correct the problems I have found.  My adjustments are never more than 0.5 units or less depending on whether a basal or bolus.    HERE IS THE GREAT PART THOUGH:  If I do not find any real problems with extreme lows or highs during that day, I put a big purple star at the top of my logbook page for that day!!!  This is important because it lets me quickly flip through the pages and see right off that I am doing better and having fewer times that I needed to be concerned about blood sugar readings.  THAT helps get rid of the panic and fear you are finding yourself dealing with right now.
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3-  Then I always make sure that once a week I reward myself for having a good week.  IF the highs are due to my own cheating or forgetting to take insulin, then I don't allow myself the reward I have "Planned for" all week long.  I look back and see how often I blew it and where I might have had external and internal stresses aggravating the situation.  BUT, if the highs or lows are not related to any misstep of my own---By Golly, I Reward Myself! because "I" managed my lifestyle just fine all week long.  It was the disease's unpredictability that brought about the issues and I took charge and made appropriate adjustments as needed.

With those 3 things where I can read them if I need to every time I check my blood sugars, and I check them at least 6 times a day, I no longer panic or fear lows and living, I just take a deep breath, recoup my bearings and move forward with the next day.  Hope this helps you some way.  If not, maybe it will find its way into someone else's sugar monitoring kit.  Good luck!
Posted about 6 years ago
Posts: 0
Starrlight, Don't feel alone!  You are a part of THIS online community now.  If there is not someone obviously there as support within your physical community, find your support here as needed.  I know when I read my first article about this organization, I was impressed by two of the members who told their story of bringing together their own area group because they, too, felt alone where they lived.  It took time and effort, but I am sure they are reaping the harvest of support and giving that comes from this type of effort.  

I know that I have found, in the past, groups and support people by simply asking my endocrinologist and primary care physician if they knew of any established groups in the area.  If not, did they know of any other patients who might want to be a support to each other even in small amounts.  Generally, I have found someone (or two or three) who are interested and in need of support just like myself.

Good luck!  Don't be afraid to use US though.
Posted about 6 years ago
Posts: 0
Thank you 4evernana for that detailed reply! i really appreciate it..its  been really tough..i am trying to do it less, but i've been testing around 20x a day..its totally crazy. I feel like its two issues-anxiety and diabetes, but theyre both feeding into eachother really badly now...still havent been driving, but have been going to friends houses for short periods of time..i need a normal life again!!!!!!1
Posted about 6 years ago