CGM Recommendation from 30+ yr type 1

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Hi guys-

I couldn't resist posting this. I have been a type 1 since I was 2 yrs old. I've survived NPh, regular, those awful pressure syringes and more. i've wiped the blood off my test strips, not too hard, and guessed the color. I've been on a pump for 10 years and love it - first disetronic.. remember them? and for the last 6 years, minimed. I would have circumvented ALL of that (or as much as possible) if I knew what a CGM would do for my life.



Do I still have diabetes? of course. Still have highs and lows? absolutely. However, my new DexCom CGM has taken away so much of my anxiety around my bloodsugars. Now when I'm high or low - I know it -KNEW it - and have to take responsibility. Its not the guessing game we all have played. I no longer get stuck somewhere without realizing which direction my bloodsugar is heading.



I am blown away by the diabetes myths that have been somewhat dispelled. Remember the idea that we are "hit" with a low spell or we are caught off gaurd. I've found, in the short 2 months I've worn my CGM, that its very seldom when my bloodsugar drops suddenly; its more likely that I've been low for awhile and haven't FELT anything. Another crazy myth that my endo (who is a diabetic) was telling me but I didn't understand until I saw it myself: Food hits your BS FAST - well other than proteins and alcohol - if i wait an hour after the food hits my lips to give insulin, its inevitable that I will be high. Further, insulin, in my body, doesn't work the way I thought it did. For me, humalog takes a good 1.5 hours to peak. No wonder I used to bottom out after 4 hours when I kept giving more insulin to get a crazy high down. Lastly, for me, protein and alcohol is a pain!! I never realized that consistently now, beer & alcohol max my bloodsugar a good 2-3 hours AFTER I drink a beer or two and keep it high if I don't properly bolus - square boluses here I come. Its a very similar reaction to what I find with high fat/protein meals.



I know, and please remember, that these examples are particular to my body, but I hope they help you learn a little more about yours as well. I feel such a relief knowing these things that I didn't know before. My defining moment? enjoying my favorite pizza - even splurged on "real crust" vs the thin I usually get - and NO CHANGE to my bloodsugar.... the entire night! Was it partially due to my spontaneous skilled carb counting and giving insulin at the right time? Of course.... but none-the-less I'm grateful that I got to have a "normal" experience eating a meal that for years has made me a bit ill afterwards when I don't do my carbs right.



My father has been type 1 about as long as me and I've told him to surpass the pump and go straight to CGM. The site is significantly less bothersome then that of an insulin pump (nothing being pushed through under your skin) and I believe the CGM is a good "starter" if you're nervous about something being attached to your body all of the time. I have a DexCom, but have also tried the Minimed. Hopefully all the systems will be integrated soon, but for now, I give two cheers for the progress thus far and I highly recommend that any type 1 diabetics strongly consider a CGM. Best part, I was able to start on my sensor in less than 24 hours after receiving it by using the instructions contained AND the price was completely reasonable.



Please feel free to contact me. I'm happy to share more information about my experience. I hope this helps others!
Posted about 6 years ago
Posts: 0
Hey Alison,
Terrific post!
I could use you up here in NY to teach some of our classes!
Nice to see u again!:kiss:
Laurie P., moderator
Posted about 6 years ago
Posts: 0
Hi: I am new to this site. I was Dx'd last November at the age of 52 after a long illness (6 months) with a gastric virus. I was started on long acting and short acting insulin but had so many lows (alot in the 30's). I was very phyisically fit (5-10 miles/day 5 days a week, swimming, biking and or treadmill). I was put on the pump (minimed) and CGM 4 months into Diagnosis. Because I was Dx'd during the 8 months of the GI virus, I never had a BG higher than 180. They caught the Type 1 in real time, so to speak. My highest A1C was 6.9. Since being on the pump I am at A1C 5.4. Anyway, I have not been able to find a site where Type 1 is discussed for adults. Thank you, whoever came up with this site. Jayne
Posted about 6 years ago
Posts: 0
I love your post, or most of it I should say. I don't know that I wold recommend holding off on a pump to get a CGM first, but I can sort of see what you are saying.
I too have a Dexcom and think it is great. I get frustrated with it at times, but it really is nice knowing which direction the sugar is heading. One number just doesn't do anything for me and I was missing the early signs of lows prior to it and not catching them until I was in the low 50s or so.
I have tried the Minimed CGM and would have to recommend against it. I tried it 2 separate times for multiple sensor sessions each time and 2 years apart and had the same results. The numbers were ok, but it hurt really bad and I got a horrible reaction on the skin patch after wearing it for 2 days.
For those considering a CGM, definitely call Dexcom and request a trial.
Posted about 6 years ago
Posts: 0
Thanks kelli-
I'm glad you posted your opinion about the CGMs and the pump vs CGM timing and thanks for the feedback about the post. I stand by my initial thought about CGM first, but i'll give it a little more context for anyone who is reading. my father is older (late 60s) and less comfortable with technology, so not only does the thought of something being "attached" to him scare him, but not knowing how to work the pump, or even be able to see it (severe diabetic retinopathy). however, I think he could manage the CGM and since my experience is with a pump that has tubing (minimed) unlike the pod types, i think he would prefer not having to always be "connected".:) but that is just my opinion, and i'm glad everyone is getting to read different ones!

Talk to you all soon!
Posted about 6 years ago
Posts: 0
Hi guys! I had forgotten I posted this awhile ago and in reading it, I have an update:
My electronics-phobic, 65+ year-old, T1D for 3 decades, poster-child-for-diabetic-complications-and-struggles-since-he-took-care-of-me-instead-of-himself dad went on a CGM in June. My mom helps him with the sites and he keeps them on until they fall off. He doesn't do anything other than watch the graph on the screen (pressing the buttons to see more trends than that is out of his league and downloading is an entirely different realm of impossible). That being said:
Last week he went to the endo and his A1C had lowered 2 points. TWO POINTS, PEOPLE.
He isn't a pump person, so is still injecting.
Just further proof of the results of a CGM. I won't mislead you: the alarms are annoying as heck and its a pain to have something (or something else) attached to you, but man... what an impact!
Posted about 6 years ago