Where can I get more information on diabetic mastopathy?

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Where can I get more information on diabetic mastopathy?

Question:

Dear CDE,

Have you ever heard of or delt with diabetic mastopathy? I was diagnosed after having a ping pong ball sized lump removed and then it grew back larger within 30 days. I consider myself well controlled and cannot find any info out there. I have tried evening of primrose oil and vitamin E and just got done with Tamoxifen to ease the pain but no luck yet. Any help or suggestions would be great. Thank you!

Answer:

Dear Sister:

Before  receiving your question, I had not actually heard of diabetic mastopathy.  However, it inspired me to do a bit research and ask my colleagues about it. Here is what I found out: Diabetic mastopathy is an uncommon fibrous breast condition that may occur mostly in women who have had type 1 diabetes for greater than 10 years and have other microvascular complications like retinopathy, nephropathy. It presents as hard benign (non-cancerous) lumps in one or both breasts. It is often a source of confusion with breast carcinoma. One definition is “a collection of radiological and histological features found in dense fibrous masses of the breast”. In 1989, two physician’s investigating DMP (diabetic mastopathy) mentioned several criteria for the clinical and radiographical diagnosis which include a long history of Type 1 diabetes, radigraghically demonstrated dense glandular tissue, one or more hard irregular, easily movable, discrete, painless, palpable masses. In this same reference, they said that because DMP can feel like breast carcinoma upon physical examination, that it is often misdiagnosed and may lead to unnecessary and multiple breast biopsies and surgical excisions. Interestingly, when these masses are removed, they tend to reoccur in the same place and may often be bigger. From the reference I read, the bottom line is that often DMP may be confused with breast cancer because it is difficult to distinguish between both physically and by imagining.  But they said that the clinical characteristics’, that it tends to be bilateral and recurrent after surgical excision enables it to be followed with ultrasound, avoiding unnecessary biopsies.

Also in my research, I came across an article at MyDiabetesCentral.com written by a woman who has DMP. She gives a very good account of her story with DMP as well as some additional resources. You can locate her article by clicking here.